tag:blogger.com,1999:blog-70756562011-12-15T03:03:11.957ZA diary of someone who is currently always tired. It will be kept going for as long as it is needed. It may be found to have long gaps between entries. This is because the person writing it is always tired! <a href="http://encarta.msn.com/dictionary_/knackered.html">What does knackered mean? (Encarta)</a>. Or for an ad-free definition, <a href="http://en.wiktionary.org/wiki/Knackered">What does knackered mean? (Wiktionary)</a>JimBnoreply@blogger.comBlogger1091100tag:blogger.com,1999:blog-7075656.post-10744686456305651692007-08-17T14:04:00.000+01:002007-08-17T14:07:55.578+01:00

I actually got a diagnosis of CFS in the end, along with some other issues, and have felt some improvement. I'm certainly not back to where I was before all this, but I'm not as bad as I was a year ago for example.I'm also going through a very stressful time at the moment, brought on by the financial difficulties a long-term illness brings, but I hope that we'll be through that soon. Once I am

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1111245479072251772005-03-19T15:10:00.000Z2005-03-19T15:17:59.073Z

I've enjoyed using blogger / blogspot for this blog - after all it's a free service, it's got loads of features, and it introduced me to the world of blogging, but it's time to move on.For the moment at least, I've got access to a site where I can use WordPress. WordPress allows me to change themes more easily, add and take away links without having to edit HTML by hand and just lots of other

JimBnoreply@blogger.com9tag:blogger.com,1999:blog-7075656.post-1110630203770628972005-03-12T10:03:00.000Z2005-03-12T12:23:23.776Z

Should have had an injection of Sustanon (testosterone) on Thursday, but because I've to go in for more tests soon, I'm not able to take anything. Taking testosterone would possibly make the results misleading. One of the tests is on the hormones that "ask" for testosterone, and also on the hormones that say "that's enough" testosterone.Once I've had the tests done, I'm changing to testosterone

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1109332326568746822005-02-25T11:18:00.000Z2005-02-25T11:52:06.573Z

I started this site as a way for me to log what was happening to me in my quest to find out why I was so bloody knackered all the time.I've still not fully found out.One thing I have found is that there are many ways to try and improve your quality of life when it's suffering due to tiredness.I do recommend that if you are tired all the time that you go and see a doctor and ask that he carry out

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1109330233497726162005-02-25T10:59:00.000Z2005-02-25T11:17:13.500Z

I went back to see my endocrinologist today.Since my last update I've had an appointment to see a specialist in relation to my high cholesterol levels - which were at 7, with 5 being desirable. I'd seen my GP, who said I wasn't in the high-risk group (I don't drink or smoke which lowers my risk considerably). He said I don't need tablets. Then when I was in to see the nurse, I was told that I

JimBnoreply@blogger.com1tag:blogger.com,1999:blog-7075656.post-1106859637393544892005-01-27T20:56:00.000Z2005-01-27T21:00:37.393Z

I've not posted on here for ages, so what's been happening? First of all, I started to feel as though as maybe I was on the mend - I don't know why, I just thought there'd been a slight improvement. I think a lot of that was psychological - I was trying to tell myself that there was nothing wrong with me, that I'd be OK soon. Trouble is, this week's been tough. I've been back to sleeping for 12

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1104185712824972032004-12-27T22:13:00.000Z2004-12-27T22:15:12.826Z

If you've been moved by the destruction caused over Christmas in Asia, please visit www.justgiving.com/theretailpark and you can donate...

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1103744721791776192004-12-22T19:27:00.000Z2004-12-22T19:45:21.790Z

Anyone who's read this boring stuff previously probably wonders where I've been. I've basically not got round to updating this - nothing more exciting than that. Here's a quick update on the last 2 months. First of all, in terms of the car incident. Wife and daughters are all OK now. The 3-year-old is still a little scared of being in the car, but for the first month we practically had to

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1098837428619674032004-10-27T00:21:00.000+01:002004-10-27T01:37:08.620+01:00

After all the drama of today, I'm now waiting for the aftermath. My little girl was sitting talking to me tonight, just before she went to sleep, distant look in her eyes, asking all kinds of questions about why the airbags went off. Or what they were. And where was the car. Really seemed to have hit her. I was told that in hospital, before I got there, she'd said she wouldn't take her top off

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1098824098625241622004-10-26T21:54:00.000+01:002004-10-26T22:26:39.776+01:00

Thanks to the driver of a Silver Ford Focus, who smashed at full pelt into the side of the car my wife was driving. He then drove off. He didn't stop to see if the 3-year old girl in the back seat was hurt. Or if the 13 year-old girl in the front seat (whos window was smashed) was hurt. He just scarpered. As it was they weren't badly hurt, and our decision just over a year ago to choose Renault

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1098220492990194192004-10-19T21:59:00.000+01:002004-10-19T22:15:50.176+01:00

Well on my last post, I pointed out that I was off to ENT clinic, and that I had a raft of questions to ask... They were: 1) Sleep study results 2) Sinusitis - do I have to take steroids FOR EVER? 3) Itchy ears - can I have anything for it? 4) Sore throat - what should I take? 5) Breathing problems - is that anything to do with the sinus troubles? Or at least that's what I said in my last post,

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1098147459419892192004-10-19T01:56:00.000+01:002004-10-19T01:57:39.420+01:00

SINUSITIS - a patient's guide Put this link up because I'm off to the ENT clinic tomorrow. Going to (hopefully) be spoken to in English by someone who knows what he's doing, so he can explain: 1) Sleep study results 2) Sinusitis - do I have to take steroids FOR EVER? 3) Itchy ears - can I have anything for it? 4) Sore throat - what should I take? 5) Breathing problems - is that anything to do

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1097859771035660172004-10-15T17:48:00.000+01:002004-10-15T18:02:51.036+01:00

I've noticed that there's a fair number of visitors coming to this blog from search engines, using the words found throughout this blog, such as "tired", "aching", "knackered" and "always". And I've also noticed that the subject of my last post was perhaps a little worrying to them - if they thought they had my symptoms. They shouldn't worry. My symptoms are my symptoms. Mine are stupid and

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1097650688937184442004-10-13T07:58:00.000+01:002004-10-13T08:00:12.990+01:00

I have started more and more to come to the conclusion that this is what is wrong with me. Thanks to unfranked parcels of blood and the delay it takes for samples to be tested, I'm yet to be diagnosed. I wish I just knew for certain what was wrong - then I can face whatever treatment I need.

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1097608908540451862004-10-12T20:15:00.000+01:002004-10-12T20:52:35.536+01:00

Colds and Flu. Everyone in this house has just been struck! Everyone except me. I've just been feeling exactly the same as normal - which is like having flu. I use a nasal steroid which may explain why I've not had any more sinus trouble than normal. So maybe I've found a good thing about this mystery illness I've got - you already feel bad when you get a cold or flu, so it doesn't make you feel

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1097457411368915512004-10-11T02:11:00.000+01:002004-10-11T02:16:51.366+01:00

My insomnia is getting worse. Or is it sleep reversal. Take yesterday. Saturday. (Monday hasn't really started yet, in my head, so Saturday was yesterday). I got up at about 7am. I didn't get out of bed properly until around 8.30am. I felt tired most of the day, but we had visitors so had to stay sociable. I went to bed at around 7pm, but didn't sleep - too much going on in the house? Don't know

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1097020456227537942004-10-06T01:54:00.000+01:002004-10-06T00:55:49.576+01:00

I overheard something when I was being tested today. I don't think I was meant to hear it. This seems to be what they are suspecting is wrong with me...

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1097008029105943412004-10-05T21:22:00.000+01:002004-10-05T21:33:41.946+01:00

I had my test today. My blood sugar needed to go below 2.2 for it to be worthwhile. I didn't get any lower than 2.9, despite having 66 units of insulin. I had to stay laying down for the duration of the tests. I was in the hospital for 8am, and the tests started at 8:30. At 13:15 the tests were over and I was allowed some water, then some food and a cup of tea. I left the hospital at about 13:

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1096931003053086812004-10-05T01:00:00.000+01:002004-10-05T00:03:23.053+01:00

I've now got no chance of eating! My alarm clock just beeped to me that it was midnight. It's always the same - your mind plays tricks on you. When I packed in smoking (and every time before that when I tried) I found for a while that images of cigarettes would appear out of nowhere, associations with cigarettes etc. I hardly ever get this now (although I do get times when I feel like I should

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1096930798218710622004-10-04T23:58:00.000+01:002004-10-04T23:59:58.220+01:00

Yes, I'm feeling hungry. Very hungry. I hadn't noticed. I've no time now to get anything. That's it now until about midday tomorrow. Ah well.

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1096930727820830802004-10-04T23:55:00.000+01:002004-10-04T23:58:47.820+01:00

Five minutes left until I can't eat or drink. Well, I'm allowed a little water. Why? Because I'm trying again tomorrow to be tested. See earlier posts from a week ago to see what I'm talking about. I've been unbelievably tired today. Tried doing a few things - some doors on some cupboards weren't straight - straightened them, then had to lie down for a bit. Tonight I wanted to nail some wire to

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1096848299863961742004-10-04T01:02:00.000+01:002004-10-04T01:04:59.863+01:00

As predicted, still awake. At 1.00am. I'm not feeling too good - I'm tired, but I am absolutely roasting hot. The temperature in here is 22.9c - that's not too hot, or is it? We've not had any heating on today, but it's sooo warm. Should I open a window? Can't - it's raining heavily outside and it would rain into the house. Maybe the bathroom window can be done. I'll go and check...

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1096835064842087292004-10-03T21:18:00.000+01:002004-10-03T21:24:24.843+01:00

I've noticed that a few times now on a Sunday I'm posting about how I can't sleep. Let's see what happens tonight! I'm about to try and get some sleep in a moment - emphasis on try! A couple more days and it's time for my tests. I'm really hoping they show something. I had a very active day yesterday. By my standards. I took two light fittings out of the living room, and replaced them with

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1096587907078004952004-10-01T01:42:00.000+01:002004-10-01T00:45:07.076+01:00

This version is from the following site: http://www.medicdirect.co.uk/tests/default.ihtml?step=4&pid=1612 Insulin Stress Test of Anterior Pituitary Function Purpose To test the integrity of the hypothalamic-pitutary-adreanal axis and for the assessment of growth hormone reserve. Principle If the hypothalamic-pituitary-adrenal axis is intact, the stress of insulin-induced

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1096587429916807492004-09-30T22:33:00.000+01:002004-10-01T00:37:47.240+01:00

Seem to be having trouble just getting a set 8 hours from bedtime 'til morning. I'm either staying awake too late or waking up too early. Bad stomach this week. I reckon it's down to the stress of building myself up for Tuesday, and then it not going ahead. My feet are unbelievably sore too. I had the shakes earlier. Bit of a nose bleed (not a major one like I used to get years ago). Wrist is

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1096480269503860322004-09-29T18:42:00.000+01:002004-09-29T18:51:09.503+01:00

The phone rang this morning. Witheld number. Didn't quite get to it in time. Waited a moment to see if a message had been left - it had. It was the PIU (Planned Investigations Unit) once again. Telling me that the appointment was now being moved to Wednesday 13th October. Two weeks from today. It should have been yesterday, but they messed up. I spoke to my consultant's secretary immediately

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1096394630385848252004-09-28T18:30:00.000+01:002004-09-28T19:03:50.386+01:00

I believe that this is the test I should have had done today. Of course I may be wrong, but I'm certainly having something very much like this. If the nurses don't change their minds again...

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1096390757204375612004-09-28T17:41:00.000+01:002004-09-28T17:59:17.206+01:00

Well, I started my fast last night, after a can of coke at 11:45. Woke up this morning - I was allowed water, but only had a very small amount. I actually slept fairly well last night, but only for about 5 and a half hours - I had to get up at 6am. Or more accurately, I had to wake up at 6am. We dropped my middle daughter off at her friend's house at 7:25. We got to the hospital on the dot

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1096317248080731802004-09-27T21:30:00.000+01:002004-09-27T21:34:08.083+01:00

Well, I've got two and a half hours until it's time to stop eating. To start the fast in readiness for tomorrow's test. I am really tired today - I have been all day. If I'm like this tomorrow then the test will be able to find anything! I'm going to drink some coke, eat some haribos, perhaps some crisps, then try and get to sleep. I've got to be up early tomorrow - we need to leave the house

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1096222790323332012004-09-26T19:19:00.000+01:002004-09-26T19:19:50.323+01:00

And now I'm in bed. Or on the bed. I'm so tired it's unreal, but I don't want to go to sleep yet!

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1096219270687732332004-09-26T18:20:00.000+01:002004-09-26T18:30:28.883+01:00

Just re-read my "need to get into a routine" post. So here's a brief run-down of my day since making that post, which was around 18 and a half hours ago. I went to sleep very soon after posting that. Woke up a few times in the night needing the loo, but very tired and couldn't get out of bed! Eventually gave in at 6:30am. Went to the loo. Felt awful, so I sat up in bed watching TV.

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1096152582433585302004-09-25T23:44:00.000+01:002004-09-25T23:49:42.433+01:00

I've often heard it said that with young babies, you must "get them into a routine". By this they mean having a set teatime, followed by a set bathtime, followed by a set bedtime etc. Supposedly this helps them to sleep better. Maybe I need to do the same. Last night was awful. Early evening, about 5:30 / 6:00 pm it seemed to go quite cold. My wife was "freezing" so she put the heating on. In

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1096071200738117602004-09-24T23:30:00.000+01:002004-09-25T01:13:20.736+01:00

Just a quick note (to myself) to add my BP was 164/95 and weight was 111 Kilos.

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1096044284853283042004-09-24T17:40:00.000+01:002004-09-24T17:59:06.033+01:00

I went to see the endocrinologist. Useful appointment. Let's get the negative bit out of the way first. I don't see him again now until 26th November or thereabouts. So I'll still be no clearer as to what's really wrong until just before Christmas. In fact that's about the anniversary of when I packed in smoking. That's the negative bits out of the way. Everything else I would take as

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1095977497889956082004-09-23T23:05:00.000+01:002004-09-23T23:12:44.456+01:00

Don't know why doctors are called "quacks". I must find out if I'm bored at some point. I certainly don't mean it in a derogatory fashion. Tomorrow I am back off to see my endocrinologist. He's probably been one of the best medical practitioners I've ever seen. Unfortunately though he's still not found out what's wrong with me - and so far I've not felt any real improvement. The biggest problem

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1095710958794881862004-09-20T21:08:00.001+01:002004-09-20T21:20:32.410+01:00

One of the symptoms of this "illness" is a problem with memory. I'd forgotten how in my last post I'd said that I'd thought I was getting better only to suffer a relapse. Today was a pretty bad day. I woke up early after not really sleeping all night - at least that's how it felt. I put a piece of flat-pack furniture together for my eldest daughter's room (a desk) and the sweat was rolling off

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1095531493463527642004-09-18T19:13:00.000+01:002004-09-18T19:18:13.463+01:00

...I have a relapse. To be honest though, I think there may be a slight improvement. It's hard to gauge though. And I've really been pushing myself. When I was at school, and we had to do athletics (just when the weather's getting good they stopped you doing footy), I always preferred the sprints. With the sprints you just give it your all for a number of seconds then can collapse in a heap on

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1095289299731490482004-09-15T23:59:00.000+01:002004-09-16T00:01:39.733+01:00

Hope to find a cure for this thing soon. Obviously. Had a serious row last night - all because I was tired. I just really got angry. No idea why I am like this, no idea at all. I just know tiredness makes me moody, and yesterday had been all about tiring myself out. Was quite emotional later. Saying that though, a few things were said which will help to move us forward.

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1095038860192858482004-09-13T02:27:00.000+01:002004-09-13T02:27:40.193+01:00

Well worth a read.

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1095037634346309562004-09-13T02:03:00.000+01:002004-09-13T02:07:14.346+01:00

I've still not been to sleep. I was absolutely exhausted ALL DAY today. Sorry to shout. When I say today, I actually mean yesterday - it's now 2am! I've not really got an explanation for this. I've been fighting to stay awake all day. I've managed it apart from an hour late afternoon. I was tired after that, after my evening meal, and later on into the night. My wife was busy trying to put

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1095028195597237772004-09-12T23:22:00.000+01:002004-09-12T23:29:55.596+01:00

Ok, so this might not sound like it's going to be a nice post. It's probably not. If you're worried, go look elsewhere! I've noticed since I started this illness that I have funny smelling sweat. As I write this I'm lying in bed, finding it hard to breathe (possibly 'cos of the humidity) and am sweating. Thing is though, my sweat never used to smell like this. It's hard to explain. It smells

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1095027718487208492004-09-12T23:00:00.000+01:002004-09-12T23:21:58.486+01:00

Well it's 11pm as I start to write this. I've had a funny day again. I was woken up at 6am by my 3-year-old telling me something about TV's. She then went back to sleep, and so did I. Sort of. I woke up again at 8am. I stayed in bed, and in fact I didn't get out of bed until some time after 10am, but I didn't get back to sleep. We then went to a shop (MFI) to look at kitchens. I couldn't get my

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1094559540105324382004-09-07T13:19:00.000+01:002004-09-07T13:19:00.106+01:00

BBC NEWS - Sleeping on the job I like the sound of this! :)

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1094539044823555002004-09-07T07:37:00.000+01:002004-09-07T07:38:44.800+01:00

This site looks very friendly and helpful. It's aimed I think at those suffering from CFS or ME. I've not been diagnosed with that (I've had no diagnosis yet) but it may be helpful to me to read what they've got to say. Looks as I say very helpful, very friendly, with a forum to join to get support off others.

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1094422236960432442004-09-05T23:04:00.000+01:002004-09-05T23:10:36.960+01:00

One of the things I hate about having this illness is that I'm missing out on things. My youngest daughter is three. She had her birthday a couple of weeks ago. Today we bought her a little bike with "training wheels" on (they used to be called stabilizers when I was little). This was out of her birthday money, with us adding a little to it. She's been asking for one of these for a while as her

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1094169057218215602004-09-03T01:48:00.000+01:002004-09-03T00:50:57.216+01:00

Had my blood tests done on Wednesday. I think there were only 4 or 5 syringe-fulls this time! Quite easy compared to previous attempts... Now I've got to wait until 24th Sept (I think) to see the specialist and find out what came out of the tests. It's late now. It's nearly 1am. I'm awake though, but VERY tired physically. Not sleepy as such, just absolutely aching.

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1093799369738907282004-08-29T18:07:00.000+01:002004-08-29T18:09:29.736+01:00

Sick of this now. Really really sick of it. I've been in bed since 3.30pm, after struggling to get out of bed this morning, despite having about 10 hours sleep last night. I'd had 12 hours sleep the night before. However, I've got to laugh about it - somehow. Fix me please. Somebody?

JimBnoreply@blogger.com2tag:blogger.com,1999:blog-7075656.post-1093797412756684062004-08-29T17:36:00.000+01:002004-08-29T17:36:52.756+01:00

What does knackered mean? Click the picture, for a definition of the word. In case you didn't know!

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1093504361694719092004-08-26T08:12:00.000+01:002004-08-26T08:12:41.693+01:00

CFS or ME. I'm beginning to think this is where my problems are coming from!

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1093387936523887352004-08-24T23:52:00.000+01:002004-08-24T23:52:16.523+01:00

I'm having tests done on Liver function. Thought I'd blog this site for reference...

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1092857199388289092004-08-18T20:26:00.000+01:002004-08-18T20:26:39.386+01:00

Read this page. I have most of these types of fatigue at some point, and at least one type every day. Well described by the author.

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1092656888068799222004-08-16T12:46:00.000+01:002004-08-16T12:48:08.070+01:00

Thought I'd update what I've been up to for the last 10 days or so all in one go. Friday 6th. Saw specialist. Saturday 7th. Daughters came home from Grandparents. Sunday 8th. Spent whole day in bed. Monday 9th thru Thursday 12th. At home. Not working. Friday 13th. Work called with a problem. Logged on and did some work! Saturday 14th. Was looking forward to first match of new season. Live on

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1092257774967156602004-08-11T21:25:00.000+01:002004-08-11T21:56:14.966+01:00

It's taken me a bit of time to get round to it, but here's an update on what's been happening. Last week started with me having my second Sustanon injection. That was Monday 2nd August. The first one, three weeks before, seemed to have made no difference. By Friday of last week (6th August), the second one still hadn't made a difference. That was the day of my appointment with the

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1091882551929527122004-08-07T13:42:00.000+01:002004-08-07T13:42:31.930+01:00

Another useful site.

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1091097957653627432004-07-29T11:45:00.000+01:002004-07-29T11:45:57.653+01:00

CancerBACUP : Pituitary tumours Just something I want to read....

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1091102045555199552004-07-29T08:59:00.000+01:002004-07-29T12:54:05.556+01:00

I thought I'd try and note down a "typical" day of mine these days.  I decided to pick a Wednesday because that's half way through the week. This isn't a real Wednesday, in fact it's Thursday when I'm writing this note. It's just a Wednesday. In fact it's probably got bits of Tuesdays and Thursdays to it as well. 6:30am Alarm goes off (radio). 6:32am Sit up in bed. Feet are very sore. Aching

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1091055065350240842004-07-28T23:51:00.000+01:002004-07-28T23:51:05.350+01:00

Growth hormone again....

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1090910251926969692004-07-27T07:37:00.000+01:002004-07-27T07:37:31.926+01:00

Too little growth hormone?

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1090910158779906542004-07-27T07:35:00.000+01:002004-07-27T07:35:58.780+01:00

Too much growth hormone?

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1090909769860500792004-07-27T07:27:00.000+01:002004-07-27T07:29:29.860+01:00

I've said this before, but I don't necessarily condone the ads at the top of the page. When I looked at this blog just know they were promoting Chinese herbs. I think I've made my personal opinion on Chinese herbs clear!

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1090660830715316082004-07-24T10:13:00.000+01:002004-07-24T10:20:30.716+01:00

I think it's only right to go through some positives, some things that we take for granted. I have a jobI have a beautiful supportive understanding wife.I have three great daughters.I have friends. Even if I don't see them that much!I have my sight, hearing etc.I can walk (even if I do get soon tired).I can drive (again, even if I do get soon tired).I've a laptop which lets me write this in

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1090660427052776102004-07-24T10:00:00.000+01:002004-07-24T10:13:47.053+01:00

I've decided to list my symptoms, the ones I can remember. Some of them only happen occasionally. A lot of them aren't anything I'd be all that bothered about on their own. I only list them here in case they are of use to anyone else. I also may use this list to take with me to the specialist next time. I may also add to this list if I see fit. When I've done this list, I'm going to try and

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1090659589988240522004-07-24T09:55:00.000+01:002004-07-24T09:59:49.990+01:00

I've a bit of the shakes again this morning. I don't think they are sugar-related now. I read something or other that says that low levels of cortisol can cause shakes. It doesn't mean that's what's causing mine, but it's proof that I should give my endocrinologist time to tell me what is causing them. I go to see him again on August 6th. That's just two weeks off now. I'm shaking again at the

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1090658835449681112004-07-24T09:39:00.000+01:002004-07-24T09:47:15.450+01:00

I hate weddings. I enjoyed my own, best day of my life (on a par with the births of my daughters). I hate other people's though. I've got to go to one today. I'm looking forward to it even less. It's my wife's step-brother's wedding. I'll hardly know anyone there. It requires me to drive 25 miles, which with the roads the way they around here means I'll be stuck driving for at least an hour

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1090367430441590052004-07-21T00:50:00.000+01:002004-07-21T00:50:30.440+01:00

A very good, well-written test.

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1090362447084368232004-07-20T23:27:00.000+01:002004-07-20T23:27:27.083+01:00

Good write-up on the Pituitary...

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1090014643842849372004-07-16T22:50:00.000+01:002004-07-16T22:55:40.293+01:00

The pictures in my previous two posts show a handful of Chinese herbs. Pictures taken using a camera-phone so apologies for the quality.   I was pretty depressed about getting nowhere with my illness back in March. I'd had no luck with my GP at that time, and was waiting for an appointment with an endocrinologist.   I then came across a Chinese herbalist store in a local town centre shopping

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1090014031684211272004-07-16T22:40:00.000+01:002004-07-16T22:58:09.833+01:00

Another picture of Chinese Herbs 

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1090013949660100472004-07-16T22:39:00.000+01:002004-07-16T23:00:00.770+01:00

Chinese Herbs (yes - you can see pieces of wood and bark in there!) 

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1090012392882131612004-07-16T22:05:00.000+01:002004-07-16T22:13:12.883+01:00

OK. One day after I last asked the question!   Any improvement on yesterday?   Erm. Well. No.   In fact the opposite!   Today I had to go back to bed at 10:30, after resisting all morning. I then slept on and off until 5pm. At 5pm I went downstairs for a bit, had something to eat, then went to bed again by 6.45pm.   I've had a bad headache all day. Painkillers made no difference to it!   Not just

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1089920299937714292004-07-15T19:42:00.000+01:002004-07-15T20:38:19.936+01:00

Quick answer? No. I thought I'd have felt a difference by now but I've not. I had the injection at 5pm on Monday. It's now 8:30pm Thursday. I've had a very bad stomach since Tuesday. Spent a lot of time seated! In my further quest to be the more and more of a burden on everyone, I may now have a hernia. Bladdy typical. I may not though. I've had one before, and last time it was on the other

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1089738397038519002004-07-13T18:00:00.000+01:002004-07-13T18:06:37.036+01:00

I went to the ENT people today. I've not got sleep apnoea. I don't think. You see the doctor didn't speak good English. I had arrived there at 15:15 and didn't get seen until 16:50. By the time I got seen I was - as expected - very tired. When I get tired like that my concentration and memory is very poor. I think he may have said something about the fact that my oxygen level dropped to 82% in

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1089668081852813312004-07-12T22:04:00.000+01:002004-07-12T22:34:41.853+01:00

35 today. Feel much older. Strange birthday really. Woke up at 6:30 frightened of oversleeping. Opened my cards etc and then went with my little girl and my wife to playgroup. Had a few angry moments today, short on patience. Over-reacting I s'pose. Knackered. Hurt my foot. Off back to sleep now. Oh yes - had my first Sustanon jab today.

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1088938935539890072004-07-04T12:02:00.000+01:002004-07-16T23:05:48.800+01:00

Hmmm....!    There seems to be a good possibility that low testosterone is the cause of ALL of my ills. Click the picture to see (requires Adobe software - Reader or Acrobat).

JimBnoreply@blogger.com1tag:blogger.com,1999:blog-7075656.post-1088897004557041922004-07-04T00:23:00.000+01:002004-07-16T23:01:32.863+01:00

A site where you can get patient info leaflets on various medications. Quite often this info is missing when you get a prescription (wrong if you ask me!). 

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1088688098477290222004-07-01T14:18:00.000+01:002004-07-01T14:21:38.476+01:00

Spoke to my wife earlier. She'd had a call from our GP saying that a prescription was now ready for my injections. GREAT! Sort of. You see I've got to make an appointment with the nurse to get her to inject me. She's not now available until July 12th (my birthday). This is only about 10 days away, but even so it's a pain in the 4rse that I've got to wait like this. I'm tempted to do it myself

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1088628750277774592004-06-30T21:45:00.000+01:002004-06-30T21:57:58.193+01:00

Sods law principle seems to have kicked in. I buy a blood-sugar monitor, and spend around 50 quid on both the monitor and the sticks to go in it. Since I bought it I've hardly done any shaking. I was in PC World on Saturday, around lunchtime, and was shaking like mad. That's when I went off to buy the monitor. I got home, had lunch, and haven't really shook since. Yet leading up to Saturday

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1088628047792413062004-06-30T21:40:00.000+01:002004-06-30T21:44:36.790+01:00

These are the readings I've had so far from the blood monitor. ---Date--- Time. Level 26/06/2004 14:33 7.8 26/06/2004 19:59 4.1 26/06/2004 23:03 4.7 27/06/2004 15:13 6.5 27/06/2004 19:03 6.2 28/06/2004 17:15 4.6 28/06/2004 19:48 6.3 29/06/2004 22:48 6.1 30/06/2004 21:21 6.4

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1088304159759787972004-06-27T03:42:00.000+01:002004-06-27T03:42:39.760+01:00

This is the reference guide for the product I bought today. 

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1088302082672971952004-06-27T03:05:00.000+01:002004-06-27T03:08:02.673+01:00

I don't know why this happens, but every once in a while I get insomnia. I have been in bed since 9:30ish, but have still not been to sleep and it's now 3am. I feel very tired. My feet are sore for some reason, as are my legs. I've only just decided to put the PC back on again and have another rummage around on it. I'll be more knackered than ever tomorrow. If only I'd won the lottery - it

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1088297442773716082004-06-27T01:48:00.000+01:002004-06-27T01:50:42.773+01:00

Back up to 4.7 a short while after eating, so that seems to be OK... Some sites I've looked at say 4.0 is the lowest your blood sugar should be, others say 3.0. As usual it's not that simple!

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1088282262756845532004-06-26T21:37:00.000+01:002004-06-26T21:43:53.166+01:00

I am fed up with feeling rough. Shaking is getting more frequent and worse. To this end I went out and bought a blood-sugar tester of the type used by Diabetics. It costs 27 quid (UK Sterling) for 50 of the test sticks that go with it. I'm told that if you are a diabetic you can get a prescription for them so you save a fortune. I decided to pay, after all I had a set of blood tests done

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1088201525360148692004-06-25T23:12:00.000+01:002004-06-25T23:13:15.920+01:00

Headache. Not nice. Feel sick. Shaking again a bit. 

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1088020905954690542004-06-23T21:01:00.000+01:002004-06-23T21:01:45.953+01:00

Is this what that wierd feeling is that I keep getting? Could be - so I need to do some more research... 

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1087758865533886852004-06-20T20:08:00.000+01:002004-06-20T20:14:25.533+01:00

I thought I'd try and add a symptom at a time to this blog, to show some of the different things I get happening to me. This time it's the "tingling feeling" - with all due respect to The Fimbles. This is where I feel strange physically. I get the feeling in different parts of my body. Tonight I have had it in my feet and lower legs. Other times it will be in my upper legs, my arms or hands.

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1087758087606797652004-06-20T19:54:00.000+01:002004-06-20T20:01:27.606+01:00

People keep asking me how I am, if I'm any better, and I have to say no. I have bad days and very bad days. Perhaps that's too negative - I do have some days that aren't too bad. Friday I basically shook non-stop all day. I asked my wife to cook me some pasta for tea that night - I ate a load of it, and didn't shake much at all on Saturday. In fact Saturday was quite a busy day by my standards

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1087591585698560772004-06-18T21:46:00.000+01:002004-06-18T22:16:53.936+01:00

Is this why I'm always shaking? I've put this here to remind me to go and look into it!

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1087546024141567402004-06-18T09:06:00.000+01:002004-06-18T09:07:04.140+01:00

I slept through from 8:30ish until 6:00ish. The alarm was still set from yesterday. I'm feeling shaky this morning. And achy. Sounds like a song is coming on...

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1087491320716983582004-06-17T17:46:00.000+01:002004-06-17T17:55:20.716+01:00

What an experience that was. I am absolutely shattered. I was up at 6:00am, out of the house for 7:20ish, at the hospital for about 8:05, in the hospital bed with a canula in my hand for about 8:45. They needed my blood sugar count to go below 2.5. It was on about 5.8 to start with (I'd fasted since midnight). They gave me 11 units of insulin. It only got to 3.7, so another 11 units was

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-108743451664907152004-06-17T02:08:00.000+01:002004-06-17T02:08:36.650+01:00

EndocrineSurgeon.co.uk - Focusing on problems with the thyroid, adrenal and parathyroid glands This is a very interesting site, which I may well take another look at...

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1087433322518347772004-06-17T01:46:00.000+01:002004-06-17T01:48:42.520+01:00

I am still awake. It's nearly 2am. I can't sleep. Probably through nerves over tomorrow. I hate migraines, or severe headaches, and I have the feeling I'll get one tomorrow. I've eaten my "last supper" now until after tomorrow's tests. Don't know if I'm allowed water or not. I'd better check. I'm already thirsty. My last drink was a cup of tea just before midnight. I usually don't have

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1087397138696069062004-06-16T15:45:00.000+01:002004-06-16T15:45:38.696+01:00

Tiscali - Medicdirect I'd already got a certain amount of info from my consultant, but wanted to post something here. This certainly sounds like what I've been told will happen.

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1087394154828561872004-06-16T14:43:00.000+01:002004-06-16T14:55:54.826+01:00

A day of confusion over hospital appointments started when my wife mis-heard which doctor's secretary had spoken to her on the phone. She thought it was the Endocrinologist side of things when in fact it was the other side - the ENT side. That appointment (I found out after a few phone calls confusing me even more) is for mid-July. In the afternoon. The day after my birthday! Not to worry. The

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1087216575838572242004-06-14T13:33:00.000+01:002004-06-14T13:36:15.836+01:00

...after a week off. I spent most of last week struggling, so I may as well come into here and struggle. I feel very rough. I'm struggling to stay awake, my eyes are wierd (they feel like they are bouncing) although my hands aren't shaking. I think I'll struggle to make it through the whole day and drive home. I don't feel much better than I did last week. It's getting a bit much now and I wish

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1087169009945818122004-06-14T00:20:00.000+01:002004-06-14T00:23:29.946+01:00

My sleep patterns have gone into a world of their own. Today I woke up at around 4.45am, went back to sleep at 7am. At 7.15am I was woken as some painters had arrived to do the outside of the house. I stayed in bed (my wife went down to deal with them). I spent the next two hours trying to get up! I was drifting in and out of sleep. I stayed awake all day, but came to bed at 6.15pm. I was asleep

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-108710533823304732004-06-13T06:40:00.000+01:002004-06-13T06:42:18.233+01:00

The Ads on these pages are not endorsed by me. It doesn't mean there's anything wrong with them of course, but they are out of my control. What is interesting is how they have managed to target (I assume automatically) products which would be of interest to someone reading this site!

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1087104239536804272004-06-13T06:10:00.000+01:002004-06-13T06:23:59.536+01:00

I've not updated now for almost two weeks. What's been happening? Well, we changed our number after the malicious call. As a result we found we could now get Broadband, which means if I end up having to work from home I'll have an easier time. Every cloud... On Thursday 4th June I had to collect the sleep monitoring machine. Or a "pulse-oximetry" machine to be more precise. I'll post pictures

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1086043599044038602004-05-31T22:48:00.000+01:002004-05-31T23:46:39.046+01:00

My sleep patterns were already bad but they were thrown out completely after receiving a malicious late-night call on Friday. I had been asleep, but the call woke me up and so I was awake until around 4am. I've not had a too tiring weekend, which was a long weekend with a holiday today. I've only had one headache in the three days. I did have a bad bout of the shakes this afternoon. Overall

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1085836420766314082004-05-29T14:10:00.000+01:002004-05-29T14:14:11.573+01:00

Went to see the endocrinologist yesterday. He had my results, and it turns out I was low on two different hormones. One was definately low, the other was on the low side of normal. Either way, he feels I need to go for more tests, which include fasting and so on, trying to get my blood sugar right down and to then see how I react. I'm not looking forward to it in some ways, but in others I am

JimBnoreply@blogger.com0tag:blogger.com,1999:blog-7075656.post-1085752066673653492004-05-28T14:43:00.000+01:002004-05-28T14:47:46.673+01:00

After my three-hour afternoon nap, I ended up not sleeping until 3am! My head was buzzing with what was said at hospital yesterday, and of what might be said today. I got to sleep in the end, but then it was 7am and the alarm was nagging me to get up. I've been to work, got there at 8.45 and left at 12.50. Then I came home, and I've picked up the PC because I am absolutely kernackered, and I

JimBnoreply@blogger.com0